Meet Cooper

Hi, I'm Cooper from Sydney, Australia. I'm 3-years-old and I have AGS7. The disease first robbed me of my ability to sit at 8 months of age and slowly I lost other skills along the way. After my diagnosis just before my second birthday, I started a new drug called Ruxolitinib. It is helping me to fight back about against the disease and through a lot of hard work I can now roll, commando crawl, get around in my Hart walker, use my iPad, says a few words and sign language and definitely light up a room with my mega-watt smile.