Aicardi-Goutieres Syndrome (AGS) is an autoimmune disorder that mainly affects the brain, the immune system and the skin in infants and babies. As a result, lifespan is greatly reduced.


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Bo is 13 months old and has AGS1. Meet Bo.

About Aicardi-Goutieres Syndrome 

Most newborns with AGS do not show any signs of symptoms at birth. However, about 20 percent are born with a combination of features that include an enlarged liver and spleen, elevated blood levels of liver enzymes, a decrease in blood platelets and abnormal neurological responses. In the first year, many AGS babies experience an episode of severe brain dysfunction which leads to irritability, inability to feed well, fevers and sometimes seizures (Genetics Home Reference)Continue reading about this complex disorder.



Meet Our Kids

Read personal stories of how Aicardi-Goutieres Syndrome is affecting our kids and families. 

In The News

A collection of various articles and stories about the kids we love affected by AGS.