I am Eli, 7 years old from Alpharetta, Ga. I found out that I have AGS 7 in Dec 2014 but I am a strong-willed, happy, never to quit kiddo!
I was born premature and stayed in the NICU for 3 months. Though I have some cardiac and hematology issues, it was not until my 1st birthday (which I celebrated in the hospital) that I started losing my motor skills and my ability to eat orally. I have not regained skills since then but I keep trying! I have six therapy sessions each week that includes OT, PT and Speech. I am typically quiet butlove to be around people. I love visiting new places and just strolling around town because the cool breeze relaxes me. But most of all, I just love to hug and cuddle with my mommy and daddy.